COS Project Groups

 

 

 

 

Condition	COS group	Lead	External link	COUSIN protocol form
Acne vulgaris	Acne Core Outcomes Research Network (ACORN)	Alison Layton	http://sites.psu.edu/acnecoreoutcomes/
Appearance of facial aging	Core Outcome Set for the Appearance of Facial Aging (IMPROVED)	Murad Alam	http://www.improvedgroup.org/
Atopic eczema	Harmonizing Outcome Measures for Eczema (HOME)	HOME	http://www.homeforeczema.org/
Basal cell carcinoma	Core Outcome Set for Basal Cell Carcinoma (IMPROVED)	Murad Alam, Emily Poon	http://www.improvedgroup.org/
Capillary malformations	Core Outcome Set for CApillary Malformations (COSCAM)	Ginger Beau Langbroek
Congenital Melanocytic Naevus	Outcome measures for COngenital MElanocytic Naevi (OCOMEN)	Welling Oei, Anne Fledderus		Protocol OCOMEN-outcomes describing domains
Cutaneous Squamous Cell Carcinoma	Core Outcome Set for Cutaneous Squamous Cell Carcinoma (IMPROVED)	Murad Alam	http://www.improvedgroup.org/
Epidermolysis Bullosa	Core Outcome Set Epidermolysis Bullosa (COSEB)	Marieke Bolling
Genital lichen sclerosus	Core outcomes for research in lichen sclerosus (CORALS)	Rosalind Simpson	https://www.nottingham.ac.uk/research/groups/cebd/projects/5rareandother/corals.aspx
Hand eczema	Hand Eczema Core Outcome Set (HECOS)	Christian Apfelbacher, Andrea Bauer
Hidradenitis suppurativa	Hidradenitis suppurativa (HISTORIC)	John Ingram
Incontinence-associated dermatitis	Core Outcome Set in Incontinence-associated dermatitis (IAD) Research (CONSIDER)	Dimitri Beeckman
Laser treatment in dermatology	International Laser TrEAtment Dermatology Registry (LEAD)	Frederike Fransen
Melasma	Core Outcome Set for Melasma (IMPROVED)	Murad Alam	http://www.improvedgroup.org/
Nail Psoriasis		Phyllis Spuls
Post-Inflammatory Hyperpigmentation	Core Outcome Set for the Post-Inflammatory Hyperpigmentation (PIH) (IMPROVED)	Murad Alam	http://www.improvedgroup.org/
Pressure ulcer	Outcomes for Pressure Ulcer Trials (OUTPUTs)	Katrin Balzer
Pyoderma Gangrenosum	Understanding Pyoderma Gangrenosum, Review and Analysis of Disease Effects (UPGRADE)	Alex G Ortega-Loayza
Rosacea	Core Outcome Set for Rosacea (IMPROVED)	Murad Alam	http://www.improvedgroup.org/
Vascular malformations	Outcome measures for Vascular Malformations (OVAMA)	Max Lokhorst
Vitiligo	International Initiative for outcomes for vitiligo trials (INFO)	Khaled Ezzedine
Vulvovaginal skin disorder	Core Outcome Set for Genital Lichen Sclerosus (COS GLS)	Rosalind Simpson

Who is already taking part?

Patients, clinicians, researchers, regulatory body and industry representatives from around the world work within CS-COUSIN.