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COS Project Groups

 

 

 

 

Condition COS group Lead External link COUSIN protocol form
Acne vulgaris Acne Core Outcomes Research Network (ACORN) Alison Layton http://sites.psu.edu/acnecoreoutcomes/
Appearance of facial aging Core Outcome Set for the Appearance of Facial Aging (IMPROVED) Murad Alam http://www.improvedgroup.org/
Atopic eczema Harmonizing Outcome Measures for Eczema (HOME) HOME http://www.homeforeczema.org/
Basal cell carcinoma Core Outcome Set for Basal Cell Carcinoma (IMPROVED) Murad Alam, Emily Poon http://www.improvedgroup.org/
Capillary malformations Core Outcome Set for CApillary Malformations (COSCAM) Ginger Beau Langbroek
Congenital Melanocytic Naevus Outcome measures for COngenital MElanocytic Naevi (OCOMEN) Welling Oei, Anne Fledderus  

Protocol OCOMEN-outcomes describing domains

Cutaneous Squamous Cell Carcinoma  

Core Outcome Set for Cutaneous Squamous Cell Carcinoma (IMPROVED)

Murad Alam http://www.improvedgroup.org/
Genital lichen sclerosus Core outcomes for research in lichen sclerosus (CORALS) Rosalind Simpson https://www.nottingham.ac.uk/research/groups/cebd/projects/5rareandother/corals.aspx
Hand eczema
Hand Eczema Core Outcome Set (HECOS) Christian Apfelbacher, Andrea Bauer
Hidradenitis suppurativa Hidradenitis suppurativa (HISTORIC) John Ingram
Incontinence-associated dermatitis Core Outcome Set in Incontinence-associated dermatitis (IAD) Research (CONSIDER) Dimitri Beeckman
Laser treatment in dermatology

International Laser TrEAtment Dermatology Registry (LEAD)

Frederike Fransen
Melasma

Core Outcome Set for Melasma (IMPROVED)

Murad Alam http://www.improvedgroup.org/
Nail Psoriasis Phyllis Spuls
Post-Inflammatory Hyperpigmentation

Core Outcome Set for the Post-Inflammatory Hyperpigmentation (PIH) (IMPROVED)

Murad Alam http://www.improvedgroup.org/
Pressure ulcer Outcomes for Pressure Ulcer Trials (OUTPUTs) Katrin Balzer
Pyoderma Gangrenosum

Understanding Pyoderma Gangrenosum, Review and Analysis of Disease Effects (UPGRADE)

Alex G Ortega-Loayza
Rosacea

Core Outcome Set for Rosacea (IMPROVED)

Murad Alam http://www.improvedgroup.org/
Vascular malformations Outcome measures for Vascular Malformations (OVAMA) Max Lokhorst
Vitiligo

International Initiative for outcomes for vitiligo trials (INFO)

Khaled Ezzedine
Vulvovaginal skin disorder Core Outcome Set for Genital Lichen Sclerosus (COS GLS) Rosalind Simpson

Who is already taking part?

Patients, clinicians, researchers, regulatory body and industry representatives from around the world work within CS-COUSIN.